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New: Foundation Inclusive Communication Toolkit – Enabling easier communication between people and services.

Engaging people with lived experience: best practice, challenges, and opportunities (Learning Report)

Resource Tags

Content Types:

Guidance Report

Implementation Levels:

Development

Prior Knowledge Required:

Basic

Organisation Size:

Large Medium Small

Sector:

Health and social care

Role:

Equality/Diversity/Human Rights Specialists HR Professionals Policy Officers/Makers Training & Development Staff

Resource content

A research report providing evidence-based recommendations on involving people with lived experience in health and social care policy. Based on literature review, workshops with people with lived experience and interviews with policymakers.

To get the most from this resource

For Different Organisation Sises:

Small Organisations (under 50 staff): Focus on recommendations in Table 4 (pages 47-48). Start with “meaningful levels of engagement” and “clear expectations.” Use simplified engagement methods from case studies.
Medium Organisations (50-250 staff): Implement full best practice table systematically. Use workshop findings to guide policy development.
Large Organisations (250+ staff): Apply comprehensive approach including all research methodology elements. Develop formal lived experience engagement strategies.

Sector Adaptation:

Education: Focus on student and parent engagement elements
Local Government: Emphasise community consultation aspects
Private Sector: Adapt public sector engagement approaches for customer/employee consultation

Implementation Timeline: Suggest 6-month pilot using report recommendations, followed by evaluation and scaling.

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