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Selected case studies – A research study on involving people with lived experience into health and social care policy and decision-making

Last Updated
17 December 2025

Resource Tags

Content Types:

Case Study

Relevant Driver(s):

4. Using evidence and experience 5. Enhancing capability and culture

Specific Action(s):

4B. Engage with lived experience and work meaningfully with communities 5A. Put in place comprehensive training programmes 5C. Share success stories

Implementation Levels:

Development

Prior Knowledge Required:

Basic

Organisation Size:

Large Medium Small

Sector:

Health and social care

Role:

Analysts Board Members Communications Staff Community organisations Data Managers Education Professionals Equality/Diversity/Human Rights Specialists Frontline Staff Healthcare Professionals HR Professionals Legal & Compliance Staff Middle managers Other Policy Officers/Makers Procurement Staff Senior Leaders/Management Training & Development Staff

Resource content

Collection of 16 case studies demonstrating best practices, challenges, and opportunities for meaningfully engaging people with lived experience in health and social care policy development and decision-making processes.

To get the most from this resource

For Non-Healthcare Sectors:

Education: Adapt case studies 1, 11, 12 (focus on student voice and participation)
Local Government: Use case studies 6, 15 (community engagement and poverty focus)
Justice: Apply case studies 4, 8 (refugee/asylum and peer research approaches)

Implementation Approach:

Select 3-4 most relevant case studies for your sector
Use the “Learning” sections to develop sector-specific policies
Adapt engagement methods shown in case studies to your organisational context
Create implementation timeline based on case study examples

Quick Start: Begin with case studies that match your current organisational capacity and gradually build to more complex engagement approaches.

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